November 23rd - 3rd GND and other random things

First off, I have to say the fundraiser was a success! It was perfect, so many of my friends and family came out to show their support. It was very touching, for me, my husband and son. I will never forget that evening and looking back on it will help me to keep going in the difficult months that lay ahead. It was so sweet of my coworkers to organize it and donate baskets to be auctioned. Even with all this shitty stuff happening to me, I still am truly blessed to be surrounded by such caring people. I don't know how much was raised yet, but with the turnout we had, I'm sure it will take a big dent out of my travel and lodging expenses in NYC.

Now for the not so great update. My appointment yesterday was concerning. I saw the my local dr before chemo and she explained that she had received a new email from my doctor at SK and that his directives were different then how she interpreted them the first time. Basically that instead of getting GND every other week, I am supposed to get it every week! Eight treatments instead of four! Needless to say, I was very upset and confused! This is my life at stake! If it has not been given as often as it should be, then how is it going to be effective against this super aggressive cancer!? I couldn't have been more clearer with my SK dr about this regimen, and my husband was there at that appointment and agreed with me that the dr said, more than once, that it was to be every other week, 4 treatments total. My local dr apologized and said she agreed with me and that she had interpreted his directives the first time the same way I did, but going forward it would have to be every week and I would have to try to get more in before the stem cell then initially planned! I was so disappointed! I had this all planned out with me going back to NYC to begin right at the first of the year and this would push me weeks back. I was in tears in her office so she emailed my SK dr again to express my concerns.

Then, she gets an email from him again saying the opposite from the previous email. That we had been right all along and it was supposed to be once every other week four times! WTF, people! Are they trying to kill me!! This isn't like screwing up an order at a restaurant! I could have died from being over treated and I would have if I had gone alone with it!

Of course I called the SK dr this morning, and he did not want to talk to me but I persisted. When he finally did get on the phone he did exactly what I thought he was going to do and put the blame on my local dr for misinterpreting the email and suggested that this is what happens when you do the chemo elsewhere (although it was he that told us that it didn't matter where we did the chemo initially).

In the end technically, no damage was done. But I don't trust any of my doctors anymore. They seriously could have killed me if I hadn't been so vocal about it. But I'm just a patient name and ID number for billing purposes right? So sorry for the run on posting, but I needed to vent.