Dragged myself down for my every three week visit to NYC last Tuesday and explained to my doctors that I am very concerned about the night sweats. Well docs wouldn't agree to do a PET scan, but after lots of begging and pleading (just short of a temper tantrum), and threatening to quit the study, I got them to agree to another CT scan at least.
Left the doctor's office and went 3 blocks away to the breast cancer building to have the scan, then back over to the doctor's office for the results. They had the results as soon as I walked in the door. Everything looked good. No changes from the last one. It's a good thing but, this doesn't satisfy me completely as I really believe a PET scan would be more appropriate. Argued with the doctors a bit more (I'm a really aggressive patient nowadays). Didn't get any where with them so it was off to the chemo suite.
I love how they call it that, the chemo "suite". Makes it sound like a luxurious, relaxing place. When in reality, you're stuck in a hot little cubicle, with anticipatory nausea, the nurse poking you like a pin cushion for your pre-chemo labs. Then they stick the IV in and give you a whole bag of poison. After the poison's all in, you get to listen to the loud BEEP BEEP from the pump for 5 minutes until the nurse comes back. Time to leave (YAY), but you are so nauesous and weak from the whole thing you can barely walk yourself out. How "suite" is that!
Sorry about the rant, I feel better now. At least mentally, excuse me while I go puke.
Left the doctor's office and went 3 blocks away to the breast cancer building to have the scan, then back over to the doctor's office for the results. They had the results as soon as I walked in the door. Everything looked good. No changes from the last one. It's a good thing but, this doesn't satisfy me completely as I really believe a PET scan would be more appropriate. Argued with the doctors a bit more (I'm a really aggressive patient nowadays). Didn't get any where with them so it was off to the chemo suite.
I love how they call it that, the chemo "suite". Makes it sound like a luxurious, relaxing place. When in reality, you're stuck in a hot little cubicle, with anticipatory nausea, the nurse poking you like a pin cushion for your pre-chemo labs. Then they stick the IV in and give you a whole bag of poison. After the poison's all in, you get to listen to the loud BEEP BEEP from the pump for 5 minutes until the nurse comes back. Time to leave (YAY), but you are so nauesous and weak from the whole thing you can barely walk yourself out. How "suite" is that!
Sorry about the rant, I feel better now. At least mentally, excuse me while I go puke.
Hang in there Jess! Every drop of that crap is another kick in Mr Hodgkins rear. I'm so happy to hear that at least the CT isclean!
ReplyDeleteKeep diligent! You're winning this fight!
Keep fighting! And I encourage you to be strong every day. There are Alternative cancer treatments that can help you and I think that this is also helpful. Take care and get well. I'll pray for you.
ReplyDeleteHi! I just read your whole blog- love it, though I wish there were pics :) I'm in NJ going to Hackensack for HL treatment and am currently on Adcetris. I was wondering if you ended up quitting the trial or what has happened since this last post? It IS helpful for others to read about similar experiences, thank you for sharing yours!
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